Friday, February 20, 2009

alive update

Okay so I made it through... just not as a whole person haha..

I am one abcess and two 3/4 inch cysts lighter. which does not equate to much weight. So I am finally ready to diverge my disease and this is only because I was finally diagnosed.

I have Acute Pilonidal Cyst Syndrome with Hirutism. Yes I know weird and what I look like now is even more weird. Although 75,000 suffer from Pilonidal cysts they are I will losely say lucky enough to be able to manage them although still probably will somewhere down the road have pain. In my case I couldn't control the infections I was getting and I was getting too many reoccurances. As a result I have a whole in my back that your could easly fit a tennis ball and golf ball side by side in. GROSSSSS ...... I know... you can imagine that I haven't been up and about but I have been trying to plug away at some art. I have some new thing I have been expirementing with and I have some new little things for Etsy, but that will be for later. Right now I cant stand for more than 20 mins. In total this will take 3 months to heal, but should have mobility within a month. We will see.

Thanks for all the well wishes and sticking by my side. Your encourgagement helps. I am just so bummed out that this all happened at a time where I was actually making sales and seeing the drean come true....

I hope all of you are doing well and know I think about you all frequently!



Jenny said...

ugggh. Yes, sounds gross. I am a big baby about that stuff and if I could see it I probably would faint or vomit, one or

At least you know what it is. I am sorry you are suffering so. NO FUN.

I pray that you heal well and everything gets back to normal for you!!!



Designs By CK said...

Hi Steph ~ I'm so sorry this is all happening to you right now...what a bummer!

Hope the healing process will be swift and you will be back to your old self soon!

I think about you all the time!

Take care!
Chris (-:

Cris said...

I am so glad to hear you are healing now. Believe or not, I have heard of that syndrome. No fun at all. It is not fair that you have to deal with it. Take care of yourself and don't overdo it! You need your rest. Bless You~~~Cris

carolyn said...

hi stephanie~
i am so glad that you are on the mend and can dabble in your art making.
art is very healing you know!
you will get back into the swing of things~
sending healing thoughts to you!!!!

Connie said...

I have no idea about what you are dealing with, but it doesn't sound like fun at all. Perhaps a test of faith? - I know one thing, you are spunky and you will not be down long!!! Connie

TattingChic said...

My goodness! You are going through such a rough time! Thank you for the update! May God bless and comfort you! I'll say a prayer for you...that's all I can do for you. I wish I could do more.
((hugs)) :)

Amariah said...

Hey Steph,

I hope you are feeling better- or at least well enough to get some Art done. Best wishes!!!

PerplxinTexan♥ said...

Oh how I hope you feel better.
Recently just discovered your blog and will be expecting updates.

P.S. I'm glad you can spell Acute Pilonidal Cyst Syndrome with Hirutism

Amy said...

OH My you poor girl!! I am so sorry that you have to go through this. I shall be sending good healing vibes your way and hope you feel better soon. Take care of yourself. :o) Amy

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